Understanding Progeria: A Genetic Disorder with Global Impact.

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10 Jan 2024

Interactive triangle.
Three things in life cannot be averted: aging, death and truth. The last of the three harmonizes the former two. Have you ever thought of aging fast and doing all it takes to achieve this feat? Well you may pray earnestly to have Progeria. For me, I don’t pray to have this disease.
                                    Photo credit: Pixabay

Welcome to the world of Progeria.
Progeria is another name for a genetic disorder called Hutchinson-Gilford Progeria Syndrome. Hutchinson was the first describe and interact with this disease in 1886. Progeria has the adept ability to make a child age faster than we could imagine. I read about Progeria in 2005 and have never failed to marvel at this grave-calling disease. Do you know anyone with a potent Elixir to reverse this light-speed aging process?

                                     Health implication of progeria.
A child with Progeria usually dies from arteriosclerosis. Pronounced physical changes often accompany the disease as a result of the rapid aging process. The lifespan of children with Progeria is 14 years on the average.

                                         Progeria Research Foundation.
The Progeria Research Foundation (PRF) was established in 1999 by Dr Leslie Gordon and Dr Scott Berns; this parents had a child with Progeria and were inspired to set up the Progeria research foundation with the mission to find a cure for Progeria. This foundation was responsible for the discovery of the Progeria gene. One remarkable achievement of the Progeria research foundation is the implementation of the first-ever drug treatment.

      A Sea of Benevolence.
The Progeria research foundation has identified 162 children with Progeria in 50 countries, held over 12 international scientific meetings on Progeria and translated its materials in thirty-eight languages. As at July 30 2019, Progeria research foundation has sponsored 5 Progeria clinical drug trials and has harnessed cell lines in over 212 cell and tissue bank. It carries out free diagnostic testing and has funded several Progeria-related projects totaling about 8 million dollars. It takes a benevolent heart to dedicate his or her life to a strange cause.

                               Meet Leslie Gordon and Scott Berns
Dr. Leslie Gordon is an associate professor of pediatric research at the Warren Alpert Medical School of Brown University and Hasbro children’s hospital in Providence Rhodes Island. She is responsible to research-related programs and Progeria clinical drug trials. Dr Gordon is also a Scientist at Boston Children’s Hospital and Harvard Medical School.
Dr. Scott Berns is a co-founder of The Progeria Research Foundation. He is the Board chairman of the foundation. A Certified Pediatrician and Clinical Professor of Pediatrics at the Alpert Medical School of Brown University, Dr Berns is also the President and CEO of the National Institute for Children’s Health Quality, an NGO that aims to improve children’s health. For their profound benevolence to humanity, I salute the courage and altruistic spirit of this duo.

                                       Brave Progerians.
It all started with Sam, the biological child of Drs Leslie and Berns. A 90-minute documentary film about Sam Berns and his family won the 2013 Sundance film festival award. You need to watch it to understand why Hope, love and determination hold lots of benevolence for humanity. You can buy and share a DVD of this documentary. Some of these kids with Progeria have passed on and several others are still braving the disease. We are positive that a cure for Progeria will be found soon.

                                   Visit the Progeria research foundation website.
Progeria is still unknown to the majority of people living across the globe. If this post has impacted you positively towards benevolence, visit the Progeria research foundation website and learn more about this disease. You can donate few dollars to their noble cause. Here is the link: https://www.progeriaresearch.org/.
Progeria in America: https://www.nationalgeographic.com/science/article/140114-progeria-disease-berns-children-premature-aging-research-gene-mutation
Progeria in Africa: https://www.cbsnews.com/pictures/progeria-first-black-child-with-rare-aging-disease/7/
Progeria videos: https://www.youtube.com/user/progeria123

I would appreciate your thoughts on Progeria.